You Should…

Standard

“That’s still going on?”

“Have you tried…?”

“Have you seen a Dr?”

“You should talk to your Dr about that.”

When you have a chronic illness, you have heard these remarks, and they get old fast. We have all held our tongues; smiled, nodded, and agreed. Even thanked people for their help and input. None of these are helpful in the slightest, as I know my body, and when things are wrong I will go see my Dr. A low grade fever for three days is not a Doctorable offense. New liquid filled cysts, and lumps in uncomfortable places is not something to rush to the nearest ER about. Ever woken up in a pool of your own blood? I sure have, and did I rush off to my Dr? No. Because the color, consistency, and amount did not qualify as something that I personally need to rush off and spend my hard earned money on another, “Just keep taking your meds, and try not to push yourself that hard again. If the bleeding blah blah blah blah!” Heard it all.

This has been another rough week for me, as I am sure you could have guessed by my last blog post. I have run fevers, thrown up, bled from every possible orifice that can bleed without threatening death, and woke up in so much pain, it took all my might not to scream at the top of my lungs. I have left epsom salt bath water black, had less than 20 hours sleep in the last 6 days, and have been popping pain meds left and right. massage-picture-fibro I called in an emergency 90 minute massage due to my muscles being SO tight, I could barely turn my head. I was an hour late to a date, which did not go so well. (He was religious, had no kids and wanted some. I am none of the above.) I have been late to work every day this week. Missed appointments. Forgotten about trainings. Etc. I can’t help but feel like such a failure some weeks, and though I am STILL going strong, I do feel a bit like a failure.

This week I got into the worst fight I have ever had with any of my siblings. My sister, who we will refer to as Delusional Hippy, got on my very last nerve. She has been poking at me for awhile, and I finally had enough. The worst part is that she doesn’t realize she is doing it. She comments on my photos, statuses, and other such social media outlets with such cruel implications hidden in innocent text. She recently implied that in order for me not to end up alone I need to lower my expectations and standards for a potential spouse. Also, there is a possibility that I will never find someone and will end up alone. She told me I needed to be ok with the possibility that there isn’t someone out there for me. O_o She said, “You seem to think you are incomplete without a man.” – Now, keep in mind that this is my sister who is married to a convicted felon who used to harass me about having sex with him. He pursued me for about 8 years, starting when I was about 13. Not a big fan of this man. He is currently in prison for the 3rd time. DH has not dated much, and is often described as ‘homely’. I am not going to toot my own horn, but even with the extra weight, skin problems, and chronic illnesses, I am still quite the looker. It is hard for me to even fathom that there isn’t someone out there who wants what I want. There is nothing wrong with wanting a family, and that doesn’t make me desperate or incomplete. I have a goal of sharing the love I have, and making a life for me and my girls. My sister and I had a blowout. With-physical-pain-you-can-pinpoint-a-problem-and-seek-the-appropriate-treatment-as-with-a-wound-or-a-broken-bone-but-it-is-vastly-more-difficult-to-pinpoint-the-cause-of-emotional-pain. I blocked her on 3 facebook accounts before she went to texting. One thing anyone who knows me understands is that if I want to be left alone, you back off. You let me be. She knew this, and pushed me to my brink. I snapped, and I tore into her like there was no tomorrow. It did not go well, and I have been sick ever since. Extra sick.

People tend to forget that emotional turmoil is also going to have a negative effect for the chronically ill. Stress causes so much pain, it is ridiculous. I broke out with 17 cysts, ranging from the size of a pea to silver dollar. Arm pits, face, neck, legs, etc. They are everywhere. Here I am emotionally and physically ill over something as silly as me being alone and sad. Being judged by a woman who is neglectful of her children, and needs of everyone but herself and her husband. She is inconsiderate, and rude, however I have always brushed it off as her personality. She is who she is and you take it with a grain of salt. I have always loved and supporter her in all her decisions. Want to marry a felon I am not really fond of? Ok. Still love you, keeping my mouth shut. If he makes you happy, and you are confident in your decision, who am I to tell you otherwise? Want to ignore the fact that your children only snack all day, every day and do not have a full nutritional diet at home? Ok. I expressed my concerns, she brushed them off. I watch my niece and nephews, and make sure they are properly dressed for the weather and eat when at my house. She is not physically abusive, and her children love her. I will express my concerns when they seem applicable, otherwise I will respect her parenting ways. It is not my direct business, and she is allowed to run her home as she pleases, just as I am. But when you step in and tell me that because of my VALUES, and my STANDARDS, I am going to be alone. As if someone of that caliber would never have interest in someone like me. How dare you?

“You are always sick. You seem sad.” – Of course I am sad! Being sick is sad!

article-2218035-1583EAED000005DC-685_634x423 “You know that a man won’t fix your illness.” – I am aware of this. Nothing can ‘fix’ my illness. But I want to share what I can with someone, and show my girls that love can blossom out of the worst of situations. Also, I think that it would be a lot easier to make it up my stairs when I am super sick if I had some nice big arms assisting me in my journey.

“You need to understand that marriage has ups and downs. It’s not all good.” – What. In. The. Good. Hell? Are you kidding me? Please.. just… I am not even going to address this one, as this is just a joke that as a divorced 29 yr old woman who has been in MORE of a married relationship in the last 2 years with a man I never lived with than she has.

So, here I am…. sick, tired, and getting unwanted advice on not only my health, but also my love life. Basically feeling like those around me feel I am unable to properly determine when I need to see a Dr, or how to care for my own broken body. Nor am I capable of creating a happy marriage one day because I have high standards, and I am too sick to expect someone of that caliber to be interested in me. Perhaps I should lower my expectations and marry a felon. Seems like someone like that might ACTUALLY be interested in me, and fill that empty part of me that is ‘incomplete without a man’. Because, you know.. I am not complete without a penis, but I should probably accept that it is likely I will never find one that will put up with my shitty life.

Umm.. I may or may not be bitter this week, and angry. Sitting at the front desk in such pain I am thinking it would be better to be numb from the neck down. My head is throbbing on the right side, vision is blurry, and my right index finger is swelling. I am not sure if the emotions caused the flare, or the flare caused the emotions, but either way it is shitty. Either way this week was awful. I can’t take the pain meds that would kill this pain, as they will knock me out. I am beat, and I have an entirely full weekend ahead of me. This is not a good mix…

I apologize for this blog. It is crazy, all over the place, but I needed to vent. Thank you for not judging the crap out of me.

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