Lucky, Lucky Me…

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This morning I woke up incredibly sore. My 4 year old had climbed into my bed during the night, no doubt to waking up feeling strange since I moved her sister into another room yesterday. Now my two that are currently home are not sharing a room. This is a huge relief for me, as bedtime and punishments are going to go much smoother. My punishments of sending to the room are more of my girls taking a breather. The corner and chores are for REAL punishments; but I digress.

I woke up with sore arms, legs, back, and neck. I am sure I had slept funny, since I was knocked out by medications instead of falling asleep on my own. I have to ensure I am in a good position before I nod off, otherwise I will likely stay with my head slightly tilted, and wake up with a stiff neck. This is also partially due to the disks being destroyed in my neck. Almost anything can cause my neck to twinge and ache, unless I am careful.

Looking at the clock it was 7am. I needed to be to work in an hour, and have a 25 minute drive. CoolClock I immediately decided that my hair and face were last on the list of things that needed to be done today. Getting out of bed, I put my aching feet on the floor. They screamed at me to get back in bed; feeling like I had stepped on a pile of broken glass, as well as swelling and burning. As usual, I ignored them and did that funny walk I have to do into the bathroom. Flipping on the light I could see that the small amount of makeup I had applied yesterday was all cleanly washed away by the hours of tears I had shed. My eyes were only slightly swollen and red, so a tiny bit of concealer and some mascara would hide that away. It took less than 30 seconds for my face, and less than a minute to pull my hair into a messy, curly ponytail. Good enough for me.

I yelled out to my already awake and playing kids to get their own clothes on, and settled into finding mine. Of course, today was a plain jeans and t-shirt day. Easy to find ones that fit right now, as I have dropped 20 lbs since I suffered through the bowel obstruction a few weeks ago. Not anything that changes how I look to those around me, but enough that I can feel my clothes getting a bit more loose. Good for when my skin is ultra sensitive, as it is today. Throw on my favorite striped hoodie, and I am good to go. I was already sore, exhausted, and my heart hurt. What a typical day for those of us who suffer from any type of chronic illness. After using the bathroom, we can add a sore ass to that pain. I sure do love fissures, don’t you?

Going into the hall I could see my 7 year old all ready to go, tying her shoes as fast as she could. She knew mom meant business. She knows that I am entirely heartbroken over what happened to my pet Bobbi The Rabbit. The youngest, however, was still pantless and dancing around in her own special amusement. Pretty typical of my carefree curly headed baby girl. At 4 years old, she towers over all of the other kids her age, and looks more like she would fit into the first grade. This causes her to be clumsy, and fumble over herself constantly. This also means that she has more accidents, and accidentally causes harm where if she were a normal sized 4 yr old, no harm would be done. Throwing a pair of cropped pants her way, I insisted she hustle, or get left. The good thing about curly hair is that it always looks intentionally messy. No need to fight this girl on her crazy locks. Let it go, and let’s go.

After dropping my girls at the daycare, I hurried down the highway towards the freeway that would lead straight to the office. Recently I had my car worked on, due to a hole in my radiator, and had found to have random car troubles since. I did find it peculiar that there was a small puddle under my car this morning, though I figured it was just from the sprinklers. I took a few photos just in case. Back to driving down the highway, I happened to look down and notice my thermostat was going crazy. hqdefault I flipped on the heat. Nothing. Cold air. GREAT! This means I was COMPLETELY out of fluid. This is a double concern because I filled the car to the brim no less than a week ago, and obviously because of the puddle. My car was about to blow. FANTASTIC! It was a good sign that no smoke was coming out of the car, as that would mean it had likely blown a gasket, or another radiator hole. There was a McDonalds no more than a block away.

After popping in the hood I was able to confirm my suspicions. There was fluid leaking near the radiator, which looked like it was at the end of it’s ropes, and my overflow was empty. I had 20 minutes to get to work, and it was very apparent that was not going to happen. Just like any child in a stressful and binding situation… I called my mommy. I called her and belted out my frustrations, my complete unwillingness to work with the mechanic’s shop again, and begged for some help. I always seem to end up having one of my amazing crisis’s on her day off. Lucky, lucky me. I get to wait in the McDonald’s for as long as needed until my mom can come get me and whisk me off to work. Luckily I have a friend whose husband is a mechanic, and would take a look at it for me later today. Lucky, lucky me.

So, here I am on my lunch break. Trying to keep my head in the game, and not think about all my ailments. Not think about the isolation that I feel, and the unhappiness that is always lingering around me. I have multiple client accounts to work on today, which only three out of the 10 accounts that need vital attention are actually mine. As an escalation and client concerns manager I deal with this daily. I do not mind having to do this as part of my job, as I am quite good at it. Anything that I can successfully do at this point makes me incredibly happy. That being said, on days where everything continuously blows up in my face, it can be stressful. That has been the last month for me. Lucky, lucky me.

I don’t want to deal with any aspect of my life right now. I have the urge to just run away, and let someone else deal with it. To hide away from the world, and not even have anyone know who I am and what I am. I don’t want to take my meds, because I don’t want to have these illnesses. I don’t want to have to make the hard decisions. The little decisions. ANY decisions. It would be nice if I could get a break. One that happens not only because I am too ill to get out of bed. Though I appreciate the breaks from the running around of my children and life on those days, I would love a break on a good day. I would love to get out and just do things for me! On a good day! Instead I am at the point where my anxiety is high, and I want to run. Run away.

Lucky, lucky me.

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Giving Up For Today…

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Today my anxiety is through the roof. I’m both physically and emotionally in pain. My heart aches, and my head aches. I’m so stuffed up I can barely breath, and I can’t keep from crying.

sleeping positions in periodsMy life is in shambles, and I have no idea how to put it back together. I’ve never felt so helpless, and I don’t know how to handle this feeling. I think I’ll give myself today to let it all out, and see if I can think straight tomorrow. I’ve given up on my relationship with “Rain”, and I’ve given up on today. I am not sure what else I’ll give up on, but right now I want to give up all together.

I really dislike how diagnostics, chronic pain, and chronic illness make you so emotional. I wish I had more control, but I don’t.

I got this…

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Clumsiness. Such a bad thing when it comes to people who are easily injured. I happen to be entirely clumsy, and often end up stepping on things, dropping things, and best of all… falling down. On Sunday while I was out to breakfast with Rain and my girls, I had a fight with a rock. No.. not a rock. A pebble. I am ashamed to say that I literally stepped on a small pebble, which took my down to my knees and caused a small tear in my left ankle ligament. How brilliant am I? It was not only painful, but so very embarrassing for me for Rain to have to come and help me up. I writhed in pain, and held back tears (which come on, I am SO used to pain I could hold back tears for days!) while we headed back to my house.

46-woman-wrapping-sprained-ankle-lgn-91242505 Rain had come over the night before, and we had a lovely evening. He came over a bit early so we could prevent as much “curiosity” peeking from the girls by him meeting them and hanging around for a bit. They adore him. This both makes me nervous, but is also comforting at the same time. I have had many friends, both male and female, who have come and spent quite a bit of time and then faded out. People come and go out of your lives, and though I have been so protective over my lovelies hearts, I feel at this point it is better for them to see that engaging with the opposite sex is not just for boyfriend/girlfriend situations. Rain and I have known each other for almost a month, so we are not even fully acquainted yet… though… we did get “acquainted” with each other that night. Quite acquainted. And it was fantastic.

During the drive home, Rain rolled down the windows to let some fresh air in because, though I was holding back tears, I was not doing such a good job at not breathing fast and heavy. The cool air felt great on my fingertips, and distracted me from my ankle. That was.. until he rolled them up. Without me noticing. Until it was too late! I was able to pull my hand in without scathing, except my poor little pinky finger. So here I am, ankle swelling and throbbing in pain, and now my pinky is bleeding. What a lovely end to a lovely date. The look on Rain’s face was nothing short of magical guilt. He insisted that he cancel all his plans and take care of the poor sick girl. I was quite tempted to just send him on his way, take care of myself, and wallow in self pity. While he was getting an icepack, getting my ankle propped up, and ensuring I was comfortable I considered the reasons to say no. Pride. That was it. Pride would prevent me from allowing him to take care of me. Guilt. The guilt of needing someone to take care of me, and being so very fragile at this point that it can be almost a requirement. I wanted to just sit on my couch and cry. I always feel so vulnerable and weak when these things happen to me. 200167732-002 I have always been a bit clumsy, and this is probably the 3rd time I have torn those same ligaments since I was a teenager, but I could take care of myself back then. I did not need someone to help me, because I could hop on one foot all I needed. Crutches didn’t ache in my armpits, and cause my hands to swell. My hips didn’t throb, and my whole body didn’t flare up. I knew I was going to end up fully exhausted, miserable, and in pain for the next few days simply because I was hurt. Why shouldn’t I let a caring, affectionate, worried man take care of me? No realistic reason. I reluctantly agreed, and hoped that it didn’t end up scaring him away. Chronic illness is serious, and having things shoved in your face can frighten anyone. Especially someone I barely know.

He took care of me. He kissed my face, played with my hair, and snuggled me. He listened to my body when it negatively reacted, and also when it positively reacted. He kept me safe from my over excited, crazy little minions; ensuring that they stayed away from my leg while I napped, but also teasing me about my law mower snore. RUDE! I didn’t know I snored so bad, but I am sure that it was the swelling of my insides in general from the injuries, not to mention the allergies of spring. He stayed for over 6 hours, doting to my every need and taking SUCH great care of me. When he left I was sad, but so pleased that he had been so good to me. He took an awful thing and turned my day back around. I am fond of Rain.

This week has also been rough. My body has been flaring due to the accident, and I have been so stressed. I had updates left and right with clients. Escalations all over the place, not to mention taking care of my own random client upsets. I was half awake, my mind has been working in slow motion, and my body was fighting itself off. By Tuesday afternoon I was so worn out that I accidentally double dosed myself on my mood stabilizer instead of my gabapentin. woman-medication-worried-200x300 In my defense, the bottles look almost identical and I was on the phone with a client. I was distracted, and I hurt myself. I only noticed about 10 minutes later when I went to reach for my inhaler and realized that my limictal bottle was at the top of my purse and not the gabapentin. Faaaaantastic. I quickly Googled the effects of what would happen at the dosage I had taken, and saw that I could quickly lose control of my cognitive function, as well as my hand eye coordination. I banged my head on my desk and considered my options. It was about 3:55pm, and I get off at 5. By that time I could have lost all control over my basic functions, and will likely not be able to drive, let alone walk. I kicked myself mentally over and over again for about 5 minutes, and then I left work. I informed my babysitter I was coming, and to have my girls ready. Let my boss know I had drugged myself, and would put myself in danger if I did not leave for home. I felt like such an idiot, but it was what it was, and I just need to remember that I rarely do that. I think this is only the 3rd time in 3 years. Not too bad of a track record, right?

Tuesday was my Rheumatologist appointment, and I was so scared! I was worried about the pain it would put me through, and the results he would find. I want him to find and help with every bit of me that is wrong, but I also don’t want to find something that is not fixable. I was also terrified that he would tell me I was crazy, and send me on my way. This did not happen at all, which was a huge relief. I would like to write a post that goes through my first appointment all on it’s own, so I am going to skip including it in this post. Let’s just say it was painful, but it also went well.

Today is Friday, and tonight I am spending the evening with my lovely Kindred Spirit, and her babies. I am so excited, I can barely contain it. She recently had a beautiful baby girl (about 3 months ago), and has two others. We have known my KS for about 6 years, and she is such a wonderful addition to my life. I wish I saw her more, but we are both full time working moms, I have my illness, and she has her new baby. We were pregnant together when I had my last minion, and our babies have been friends their whole lives. They hear each others names and go bizerk! She is coming with her lovely family, and a bottle of wine. We are all going to snuggle in front of the TV for my weekly ritual (over 4 years now) of movie night Friday and watch Frozen. The kids will pile up on each other on the blanket, my teenager will coo over baby P, while KS and I catch up and laugh the same way we always do. Sunday is Easter, and I get to spend the morning and afternoon with my babies, and then have a date with Rain while my kids go to their grandma’s. I am hoping this week brings nothing but happiness, and I am able to rest my poor body. I have many joyous things in my life right now. Many things to love and smile over. It was just a tough week… but I am a tough girl.

I got this.

You Should…

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“That’s still going on?”

“Have you tried…?”

“Have you seen a Dr?”

“You should talk to your Dr about that.”

When you have a chronic illness, you have heard these remarks, and they get old fast. We have all held our tongues; smiled, nodded, and agreed. Even thanked people for their help and input. None of these are helpful in the slightest, as I know my body, and when things are wrong I will go see my Dr. A low grade fever for three days is not a Doctorable offense. New liquid filled cysts, and lumps in uncomfortable places is not something to rush to the nearest ER about. Ever woken up in a pool of your own blood? I sure have, and did I rush off to my Dr? No. Because the color, consistency, and amount did not qualify as something that I personally need to rush off and spend my hard earned money on another, “Just keep taking your meds, and try not to push yourself that hard again. If the bleeding blah blah blah blah!” Heard it all.

This has been another rough week for me, as I am sure you could have guessed by my last blog post. I have run fevers, thrown up, bled from every possible orifice that can bleed without threatening death, and woke up in so much pain, it took all my might not to scream at the top of my lungs. I have left epsom salt bath water black, had less than 20 hours sleep in the last 6 days, and have been popping pain meds left and right. massage-picture-fibro I called in an emergency 90 minute massage due to my muscles being SO tight, I could barely turn my head. I was an hour late to a date, which did not go so well. (He was religious, had no kids and wanted some. I am none of the above.) I have been late to work every day this week. Missed appointments. Forgotten about trainings. Etc. I can’t help but feel like such a failure some weeks, and though I am STILL going strong, I do feel a bit like a failure.

This week I got into the worst fight I have ever had with any of my siblings. My sister, who we will refer to as Delusional Hippy, got on my very last nerve. She has been poking at me for awhile, and I finally had enough. The worst part is that she doesn’t realize she is doing it. She comments on my photos, statuses, and other such social media outlets with such cruel implications hidden in innocent text. She recently implied that in order for me not to end up alone I need to lower my expectations and standards for a potential spouse. Also, there is a possibility that I will never find someone and will end up alone. She told me I needed to be ok with the possibility that there isn’t someone out there for me. O_o She said, “You seem to think you are incomplete without a man.” – Now, keep in mind that this is my sister who is married to a convicted felon who used to harass me about having sex with him. He pursued me for about 8 years, starting when I was about 13. Not a big fan of this man. He is currently in prison for the 3rd time. DH has not dated much, and is often described as ‘homely’. I am not going to toot my own horn, but even with the extra weight, skin problems, and chronic illnesses, I am still quite the looker. It is hard for me to even fathom that there isn’t someone out there who wants what I want. There is nothing wrong with wanting a family, and that doesn’t make me desperate or incomplete. I have a goal of sharing the love I have, and making a life for me and my girls. My sister and I had a blowout. With-physical-pain-you-can-pinpoint-a-problem-and-seek-the-appropriate-treatment-as-with-a-wound-or-a-broken-bone-but-it-is-vastly-more-difficult-to-pinpoint-the-cause-of-emotional-pain. I blocked her on 3 facebook accounts before she went to texting. One thing anyone who knows me understands is that if I want to be left alone, you back off. You let me be. She knew this, and pushed me to my brink. I snapped, and I tore into her like there was no tomorrow. It did not go well, and I have been sick ever since. Extra sick.

People tend to forget that emotional turmoil is also going to have a negative effect for the chronically ill. Stress causes so much pain, it is ridiculous. I broke out with 17 cysts, ranging from the size of a pea to silver dollar. Arm pits, face, neck, legs, etc. They are everywhere. Here I am emotionally and physically ill over something as silly as me being alone and sad. Being judged by a woman who is neglectful of her children, and needs of everyone but herself and her husband. She is inconsiderate, and rude, however I have always brushed it off as her personality. She is who she is and you take it with a grain of salt. I have always loved and supporter her in all her decisions. Want to marry a felon I am not really fond of? Ok. Still love you, keeping my mouth shut. If he makes you happy, and you are confident in your decision, who am I to tell you otherwise? Want to ignore the fact that your children only snack all day, every day and do not have a full nutritional diet at home? Ok. I expressed my concerns, she brushed them off. I watch my niece and nephews, and make sure they are properly dressed for the weather and eat when at my house. She is not physically abusive, and her children love her. I will express my concerns when they seem applicable, otherwise I will respect her parenting ways. It is not my direct business, and she is allowed to run her home as she pleases, just as I am. But when you step in and tell me that because of my VALUES, and my STANDARDS, I am going to be alone. As if someone of that caliber would never have interest in someone like me. How dare you?

“You are always sick. You seem sad.” – Of course I am sad! Being sick is sad!

article-2218035-1583EAED000005DC-685_634x423 “You know that a man won’t fix your illness.” – I am aware of this. Nothing can ‘fix’ my illness. But I want to share what I can with someone, and show my girls that love can blossom out of the worst of situations. Also, I think that it would be a lot easier to make it up my stairs when I am super sick if I had some nice big arms assisting me in my journey.

“You need to understand that marriage has ups and downs. It’s not all good.” – What. In. The. Good. Hell? Are you kidding me? Please.. just… I am not even going to address this one, as this is just a joke that as a divorced 29 yr old woman who has been in MORE of a married relationship in the last 2 years with a man I never lived with than she has.

So, here I am…. sick, tired, and getting unwanted advice on not only my health, but also my love life. Basically feeling like those around me feel I am unable to properly determine when I need to see a Dr, or how to care for my own broken body. Nor am I capable of creating a happy marriage one day because I have high standards, and I am too sick to expect someone of that caliber to be interested in me. Perhaps I should lower my expectations and marry a felon. Seems like someone like that might ACTUALLY be interested in me, and fill that empty part of me that is ‘incomplete without a man’. Because, you know.. I am not complete without a penis, but I should probably accept that it is likely I will never find one that will put up with my shitty life.

Umm.. I may or may not be bitter this week, and angry. Sitting at the front desk in such pain I am thinking it would be better to be numb from the neck down. My head is throbbing on the right side, vision is blurry, and my right index finger is swelling. I am not sure if the emotions caused the flare, or the flare caused the emotions, but either way it is shitty. Either way this week was awful. I can’t take the pain meds that would kill this pain, as they will knock me out. I am beat, and I have an entirely full weekend ahead of me. This is not a good mix…

I apologize for this blog. It is crazy, all over the place, but I needed to vent. Thank you for not judging the crap out of me.

The Lake Went Dry…

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A few years ago I went on a drive up to a lake with some of my family. Once we arrived, we saw that it had gone dry during the drought that Southern Utah was experiencing at that time. I started spouting off random dramatic sonnets, when I realized that it actually applied to many things. Here is what I came up with. Enjoy.

DLB2“I went to the lake that day, but it had gone dry. As I stared at the sandy bottom I thought to myself….. it seems even my pleasures had dried up with my dreams. Take myself out for a day of fun, but fun doesn’t seem to live here anymore. As I walked the path that used to lead me to cool refreshment I pondered how I had gotten here. What had I done to make my lake dry? What steps had I taken to drain my fountain of youth, and what will it take to make the waters flow freely again? I picked up a rock and threw it as hard as I could. As I squinted my eyes in the glare of the sun, I lost sight of my rock but only for a moment. As the pebble came crashing down into the earth, just as it seems my life had, I turned to leave…. but I stopped. If I leave this place and return to the desert that is my home, what have I accomplished? I saw this place as what I had lost, what I no longer had… But maybe it was the view and not the actual place that brought such sorrows. Perhaps if I look at it in another light, things would not seem so grim. As I looked to my feet, I saw glorious sparkles of light. Just beneath the sand, protruding slightly, was a coin. I picked up the coin, flipping it over in my hand… rolling it between my fingers. It was beautiful. I went to the lake that day, and I discovered wondrous things the water had kept hidden. I went home with many treasures that day.”

Every day…

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Today I went to work. I went to work, and I was sore. I was sore, and miserable, and tired. I was exhausted the WHOLE day, and kept losing track of what I was doing. But I went. I got work done, and I was productive, even in my spaced out state. My knees are killing me, and I can barely walk. I have pain in every joint, and my hands have locked up multiple times today. I have broken out all over my chest, and I am cramping like crazy. But I went to work. I worked all day. I did my training, and I was good at it.

RBB-B04150B - © - rubberballI kept thinking about my future today. As I called and make an MRI appointment for next month, I kept thinking about what they will find. No matter what it is, it is a step towards recovery. Right? Even if there is a large amount of damage, I can do this. I can get through this pain. I can push myself into being healthy. Into being me again. Limited? Yes. But me all the same. Right now I am forcing myself to finish this simple post. I have taken muscle relaxers, and I am heading off to bed.. but I wanted to remind myself that I did it. That I can do it again tomorrow. And the next day. And the next day.

I can do it every day.